Broadly, I am interested in how participatory research methodologies in the environment, health, and medicine are situated within the broader context of technology-driven changes in sharing practices, forms of scientific labor, scientific citizenship, and research organization. I address practices undertaken by patients, families, and lay people that include both novel and more traditional forms of participation, including how a wealth of personal data is being taken up in changing understandings of the self and care, and as a strategic asset for research in the life and health sciences and struggles for environmental justice.
I am committed to using participatory methodologies in my research. In February 2020, I hosted public workshops on the use of graphic art in activism and popular education in Quito and Lago Agrio, Ecuador. This was a chance to share and reflect with members of the communities in which I had conducted research on pressing socio-environmental challenges and how best to convey these concerns to neighbors, friends, and those further afield.
FIRST AUTHOR ARTICLES
- The double-edged sword of digital self-care: Physician perspectives from Northern Germany
- Meeting the needs of underserved populations: Setting the agenda for more inclusive citizen science of medicine
- Data Work: Meaning-Making in the Era of Data-Rich Medicine
- Health Information Counselors: A New Profession in the Age of Big Data
- Ethical Considerations for Citizen Science in Biomedicine
CO-AUTHORED ARTICLES
- Decolonization is a metaphor towards a different ethic. The case from psychedelic studies
- The Frog and the Vine: Indigenous Knowledge, Biomedical Innovation and the Ethics of Symmetric Science in Latin America
Please get in touch if you would like a PDF copy of any article.
amelia fiske 